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Cystic Fibrosis Trust
Forum

Become a CF Trial Ambassador

Our CF Trial Ambassador's Forum is made up of representatives from the whole cystic fibrosis (CF) community. Individuals of a variety of ages, backgrounds and experiences share their views and opinions by answering surveys and questionnaires, or by joining online focus group discussions, allowing them to interact with research teams and other people with cystic fibrosis. 

As a CF Trial Ambassador you will be able to share your experiences of living with CF, or of participating in trials, with researchers. Researchers will also be able to share information about the work they are doing with you, allowing for an equal exchange of knowledge.

CF Ambassadors will be able to:

  • Provide a wide and diverse representation of our CF Community
  • Provide their views, opinions and feedback on tools and resources of the Cystic Fibrosis Trust, including literature, webpages and the Cystic Fibrosis Trials Tracker
  • Complete surveys, questionnaires and comment forms from the Trust, clinical teams or researchers/industry helping to ensure a high response rate and robust results
  • Join webinars, digital forums and social media feeds to comment on proposed new CF treatments or procedures
  • Provide feedback to pharma/industry or academics on clinical trial design in the conceptual stage, ensuring that the needs and requirements of the CF Community are being taken into consideration
  • Join Question & Answer sessions

This is without obligation. There is no need to commit to a standard number of hours for this role as opportunities will arise on an ad-hoc basis.

If you feel you’d like to learn more about how and why clinical trials are conducted, we’d recommend the free FutureLearn video-based course

Register below

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Name
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Address
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Telephone
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We encourage Involvement from all sectors of our CF Community – which best describes your connection?
Chose one of the below options:







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Other (Please Specify)
Please confirm age range you represent of a person with CF (some questionnaires or surveys may only be relevant to paediatrics or adults)
Chose one of the below options:


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This is not a requirement, but if you have any past experience of trial participation, can you give brief details
(What was the trial for, what did you do, how long did it last, do you know the outcome?)
Clinical Trials Newsletter

Research we fund

We fund research to tackle some of the most pressing issues in CF today. Find out how your donations are making a difference.

What is CF?

Cystic fibrosis, or CF, affects the lungs, digestive system and other organs, and there are around 10,500 people living with it in the UK.

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