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Cystic Fibrosis Trust

Planning for end of life

Getting difficult conversations out of the way, so you can focus on living life.

Making plans for the end of life can be very difficult, but it’s a good idea for everyone to start thinking about it early on, whether they have health problems or not.

Writing a will is a great start, particularly if you have children, and ensures that your wishes will be noted, lightening the load on loved ones. But there may be other things that are important to you that you can discuss in advance of your death; for example your thoughts on end-of-life care, organ donation, making memories for your family or funeral arrangements. 

A guide to end of life planning for people with cystic fibrosis

Our new guide provides some practical information to help anyone, including those without CF, who wants to ensure their wishes at the end of their life and following their death are noted.

Download the PDF

For emotional and psychological support around any of the issues raised on this page, please speak to your CF team or contact our helpline on 0300 373 1000 or by email.


The Trust is committed to funding and supporting cutting-edge research to find new and better treatments for cystic fibrosis. Take a look at some of that work and the progress that is being made.

Discover more

What is cystic fibrosis?

Find out more about cystic fibrosis, its diagnosis and how it is treated, as well as useful links to our publications and other organisations who can help.

Read on

More information

If you would like to find out more about any of our campaigns, publications or anything else, get in touch and we'll be happy to help.

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