The latest news and research from the world of cystic fibrosis, keeping you up-to-date and in the know.
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When the author Helen Stevenson was told her firstborn daughter had cystic fibrosis she couldn’t bring herself to write any more. It felt like...
Petition increases pressure for an agreement to be reached on precision medicines.
Lynsey Beswick, Public Affairs Officer at the Cystic Fibrosis Trust, takes part in the NICE appraisal of precision medicine Orkambi.
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The assessment of Orkambi® continues today as The National Institute for Health and Care Excellence (NICE) takes evidence from people with cystic...
Parent and grandparents of people with cystic fibrosis and supporters of the Trust gathered in London on Tuesday for an update on the Trust’s...