Your donation will make a difference:
Cystic Fibrosis Trust
  • Home
  • /
  • Home
  • /
  • News
  • /
  • Number of people living with cystic fibrosis hits 10,500

Number of people living with cystic fibrosis hits 10,500

The number of people living with cystic fibrosis (CF) in the UK has risen to 10,500 for the first time, according to new data from the UK CF Registry announced by the Cystic Fibrosis Trust today.

The increase reflects the impact of ground-breaking scientific research, a better understanding of CF and the risks of cross-infection, and new-born screening (introduced UK-wide in 2007), and this growth could accelerate further with access to life-saving drugs - this is why we need a deal. While the growing population is a sign of great progress, it brings with it an added demand on the 60-plus CF centres providing care in the UK, supporting an aging existing CF population and an extra 215 adults with CF a year.

The Registry data shows the range and depth of care that this growing population needs, such as antibiotics, supplemental feeding and other treatments to keep them well. As they grow older, people with CF are also experiencing complications such as liver and bone disease and CF-related diabetes (CFRD).

Dr Janet Allen, Director of Strategic Innovation at the Cystic Fibrosis Trust, said: “The rise in the number of people surviving is great news and is a result of decades of research. With hundreds of extra children surviving into adulthood each year, the NHS may struggle to cope with these extra numbers, which is almost the equivalent of building a new cystic fibrosis unit every year.”

As demonstrated throughout CF Week, the Trust is determined to continue the fight against cystic fibrosis and to help meet the challenges ahead; continuing to fund research, support improvements to the quality of clinical care, provide vital information and support and shout loud on the issues that matter.

Find out how you can support our work, or donate today.

Related content

  • Triple timeline announced by NICE

    Yesterday, NICE announced its planned timelines for assessing the triple combination therapy, with 16 December 2020 the date they expect to publish...

  • Emma's story: Getting the COVID-19 vaccine

    How has the past year been for you? Like everyone else who has CF, I had to shield from mid-February to August, before going back to work until...

  • UK CF Medical Association's statement on coronavirus

    If you have questions that are not answered in the below please contact our Helpline on While we endeavour to...

  • UK Cystic Fibrosis Registry

    How does the Registry work? CF care teams enter data at every specialist centre and clinic across the UK, with over 99% of people with CF consenting...