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Cystic Fibrosis Trust
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Information Manager

Salary: £34,670 per year including London weighting

Contract type: Permanent

Home-based or Headquarters office, Aldgate, London

The Cystic Fibrosis Trust is seeking an Information Manager to oversee our portfolio of over 70 factsheets, booklets, special information packs and clinical guidelines aimed at people affected by cystic fibrosis, and cystic fibrosis health professionals.

Our award-winning information materials span all aspects of cystic fibrosis, from new diagnosis, to care and treatment of CF, education and employment, and complications such as diabetes. We also publish a suite of guidelines for health professionals to support improved clinical care of people with cystic fibrosis. For someone passionate about empowering people affected by long-term health conditions, through the provision of high-quality health and other information, this will be an exciting and rewarding role.

The Information Manger will oversee all stages of our information production, from identifying topics and involving end-users, to drafting, review, publication and dissemination. The postholder will be expected to demonstrate a strong understanding of best practice in health information provision, and a pro-active and hands-on approach to developing new information materials and maintaining the existing portfolio, including identifying opportunities to promote publications to their target audiences and evaluating impact.

Working on a broad range of both lay and clinical information, an understanding of health / medical terminology and a knack for translating complex health information into lay terms would be an advantage, and an exceptional eye for detail and solid proofreading and editing skills are essential.

Due to the high number of information resources in the Trust’s portfolio, the successful candidate will possess strong organisational skills, as well as an ability to manage competing priorities and meet deadlines, and work within agreed budgets.

As the role is highly collaborative, involving colleagues across the organisation, end-users, external suppliers and expert clinicians, excellent interpersonal skills are a must.

The role also includes line management of the Information Officer.

This is a full-time role with the opportunity to work flexibly and from home.

Benefits include 30 days annual leave and opportunities for learning and development.

Interviews: 27 March 2019

Apply today  

If you feel you can contribute to helping us create a life unlimited for people with cystic fibrosis, take a look at the full role description, complete the application and equal opportunities forms, and send these with your CV and a covering letter detailing your relevant experience to recruitment@cysticfibrosis.org.uk. The equal opportunities form will be separated from your application form prior to the selection process and is used for us to collect aggregated anonymous data only. All information you provide will be treated as sensitive data under the Data Protection Act 1998.

Interviews: 27 March 2019

Your privacy

We welcome your interest in working with us here at the Cystic Fibrosis Trust. In order to review and manage your application, we need to collect certain personal information about you through your application. We are committed to protecting your personal information and being transparent in what we do with it. 

We will only use your personal information as required to manage your application to work with us, or as required by applicable law or regulatory requirements.  

We do ask that you help us monitor our performance on equality by completing the accompanying Equal Opportunities Form which contains no identifiable personal information. Doing so is optional, and any information you provide through this form will be used to provide generalised aggregated reports. It will not affect your application in any way and is kept separately.

In the event your application is unsuccessful, we will retain your information for up to 6 months, before it is disposed of confidentially.  

For more detailed information on your rights and how we use any data you provide us, please see our privacy policy.


Research we're funding

The Trust is committed to funding and supporting cutting-edge research to find new and better treatments for cystic fibrosis. Take a look at some of that work and the progress that is being made.

What is cystic fibrosis?

Find out more about cystic fibrosis, its diagnosis and how it is treated, as well as useful links to our publications and other organisations who can help.

More information

If you would like to find out more about any of our campaigns, publications or anything else, get in touch and we'll be happy to help.