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Cystic Fibrosis Trust

Campaigning hard

We are here to shout loud and campaign hard for better care and services for people with cystic fibrosis (CF), but to really be heard we need you to join us!

We tackle issues that matter – access to medicines, fairer transplant processes and equal care for all – and the more people join in, the louder our voice will be. Together, we have the power to create a brighter future where people with cystic fibrosis (CF) can live a life unlimited, so let’s speak up and make it happen, sooner.

Our campaigns have called for better facilities for people with cystic fibrosis at King’s College Hospital, a national lung allocation system and access to cost-effective travel insurance and free oxygen on flights. Now, we are campaigning for fairer access to precision medicines that are in the pipeline.

Choose a campaign below to find out more about our work and how you can get involved, and if you have any questions or want to help out, contact publicaffairsteam@cysticfibrosis.org.uk - we'd love to hear from you!


Stopping the Clock

We are working to create fair access to precision medicines for everyone with cystic fibrosis in the UK. Find out more about our Stopping the Clock campaign and get involved with actions in your region.

Raise your voice

Hope for More

We are petitioning for a fairer lung allocation system across the UK so that people with CF can receive more transplants and a better quality of care. Read our report and find out about our campaigning.

Get involved

Join a campaign

Sign up to our campaigning mailing list and we'll keep you up to date on the CF campaigns you're interested in and the campaign actions relevant to you.

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Previous campaigns

  • King's campaign: Enough is enough! A campaign around the delayed development of a much-needed new CF ward at King's College Adult CF Centre.
  • Keep Wythenshawe Special! Highlighting the implications of the relocation of specialised services for the adult CF unit in Manchester following a Healthier Together initiative across Greater Manchester. Over 2,500 people from the CF community signed a petition in support of the campaign.
  • Access to medications. Calling for an end to the postcost lottery, and improved access to treatments.
  • MP visits to CF centres in England. Around 30 MP's from across all parties were invited to find out more about CF care and hear about the key issues affecting people with cystic fibrosis.
  • Heart disease review and cystic fibrosis. Fighting the closure of specialist heart units and highlighting the implications of the closure for CF services.

Campaign coalitions we belong to

In the news

Take a look at the latest news on our Stopping the Clock and Hope for More campaigns and the work we're doing to improve life for people with cystic fibrosis everywhere.

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