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Cystic Fibrosis Trust

UKCFC 2019: day two

UKCFC is the largest annual UK conference dedicated to care and research in cystic fibrosis.

Friday 27 September 2019

Day one is designed for a multi-disciplinary clinical, research and academic audience – providing the latest pipeline of international cystic fibrosis research and innovation.

Register for day two

9:00 Conference registration

9:30 Welcome to day two

Dr Keith Brownlee, Director of Policy, Programmes and Support, Cystic Fibrosis Trust

09:45 Session one: UKCFC day one recap

Cystic Fibrosis Trust research team

Members of the Trust’s research team will reflect on day one of UKCFC, providing updates on: development of new therapies for cystic fibrosis, innovative ways to reduce the burden of care, Trust-funded research and personalized medicine of the future.

10:45 Session two: The challenges and opportunities of getting older with CF

A virtual conversation between two people with CF about their lived experience of and concerns about getting older with cystic fibrosis and all the challenges, concerns and happiness it brings.

11:00 Coffee & networking

11:15 Session three: The changing face of CF treatment and its impact on emotional wellbeing

Dr Samantha Phillips,UK Psychosocial Professions in CF Group (UKPPCF), Lead Clinical Psychologist for Adult and Paediatric Cystic Fibrosis Services at Bristol Children’s Hospital & Co-Chair UKPP-CF Group

12:00 Session four: Packing a punch, the importance of impact

Cystic Fibrosis Trust 

Highlighting the collaborative relationship between supporters and the Cystic Fibrosis Trust and showing the impact their dedication has on the Trust’s ability to do the work it does. 

12:45 Conference close

Richard Hunt, Chairman

13:00 Conference lunch

14:00 Afternoon workshops (60-90mins)

A) Positive parenting and resilience: Dr Mandy Bryon, Consultant Clinical Psychologist and Head of Psychological Services, Great Ormond Street Hospital & Helen Oxley, Consultant Clinical Psychologist, Manchester Adult Cystic Fibrosis Centre. 

A workshop focusing on practical skills for parenting children with cystic fibrosis and dealing with unresolved issues in adulthood.

B) CFTR modulators: Where we are and where we are going:  Elaine Bowman Specialist pharmacist - respiratory medicine, Royal Brompton and Harefield NHS Trust & Michael Dooney, CF pharmacist, Blackpool Adult CF Service and Manchester Adult CF Centre

An update on the use of CFTR modulators following their introduction in 2013 to the present and an outline of the potential breakthroughs and challenges ahead. 

15:30 Close

Research we're funding

The Trust is committed to funding and supporting cutting-edge research to find new and better treatments for cystic fibrosis. Take a look at some of that work and the progress that is being made.

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What is cystic fibrosis?

Find out more about cystic fibrosis, its diagnosis and how it is treated, as well as useful links to our publications and other organisations who can help.

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